Release date: 3rd July 2018
Young Adult Non-fiction
Paperback ISBN: 978-1-9998053-5-7
Number 1 bestseller Amazon & Waterstones
Nominated for The Peoples Book Prize 2019
ABOUT: From a darkened world, bound by four walls, a young woman called Jessica tells the tale of her battle against the M.E Monster. The severest form of a neuro immune disease called Myalgic Encephalomyelitis went to war with her at just 15 years old. From beneath her dark glasses, Jessica glimpses a world far different from the one she remembers as a teenage school girl. This true story follows her path as she ends up living in hospital for years with tubes keeping her alive. This harrowing story follows the highs and lows of the disease and being hospitalised, captured through her voice activated technology diary called ‘Bug’ that enables her to fulfil her dream of one day becoming an author. It provides a raw, real-time honesty to the story that would be impossible to capture in hindsight.
ABOUT THE AUTHOR: Jessica Taylor-Bearman shares her inner-most thoughts and real-time emotions – adapted from her diary growing up as a teenager in South-East England – as she experiences the terrifying discovery that, aged 15, instead of partying, studying and socialising, she would rapidly become bed-ridden, ultimately unable to move, speak, eat…Despite the odds, Jessica never gave up. Her dream was to become an author, to be able to marry, leave the hospital, enjoy life. In July 2018, her first book, A Girl Behind Dark Glasses, will be published by Hashtag Press. Supported by a hugely successful crowdfunding project, Jessica’s story will be unveiled at an ideal time – Jessica features in a film called Unrest by Jennifer Brea, a journalist and filmmaker from New York, which aims to raise awareness about severe Myalgic encephalomyelitis (M.E). After winning a prize at the Sundance Film Festival earlier this year, the now Oscar-nominated film is now on general release in the UK, coinciding with a review of the controversial National Institute for Health and Care Excellence (Nice) guidelines into the diagnosis and management of the illness.
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